JA slide show

The importance of sports for the hemophiliacs


Looking after hemophiliac children


The recognition of hemophilia in a newborn baby causes stress, hopelessness, and even the feeling of guilt especially for parents without having any hemophiliac in their relatives. Most of these parents feel unable and weak for looking after their hemophiliac child.

The parents of a hemophiliac child should have optimism, strong morale, and logical encounter with this disease in order to help their child having a natural growth both mentally and physically. Their own effort will avoid disability of the child. Therefore, the purpose of the treatment of hemophilia is to gain the maximum of health, and to decrease the bleeding problem to the least which is feasible with the help of not only the head-doctors of remedial group but also parents of the child.

The medical team for the treatment of hemophilia includes the following specialists:

1. Hematologist

2. Pediatrician

3. Orthopedist for diseases and problems of bones and joints

4. Physiotherapist for doing physical exercises and appropriate sports

5. Dentist

6. Nurse for coordinating the remedial issues of the child and teaching parents in hemophilia clinic

The role of the nurse is really crucial since s/he is usually the first person in the clinic communicating with the patients.

7. Psychiatrics: after the diagnosis of hemophilia, he will help parents to come over the primary stresses. In addition, in growing years, he helps the child, his/her parents, siblings and other family members knowing about hemophilia and solving related issues.

8. Parents are the complements for the medical team. They should be trained for correct way of looking after their child and finding the best treatment for him/her. Parents should participate in the treatment of their child as much as they can. It is needed that parents collaborate with hemophilia clinic staff in managing hemophilia, medical tactics, and physical activities needed for improving the

health level of their child.

What is hemophilia?

Hemophilia is a hereditary disease. A hemophiliac is either the missing or deficiency of the clotting protein found in plasma responsible for coagulation of blood. Hemophilia A (or factor VIII deficiency) is the most common type of hemophilia. The second type in range is hemophilia B (factor IX deficiency). When the hemophiliac is injured, s/he doesn’t bleed faster or more than normal people, it only lasts longer. Small skin injuries and bruises won’t usually cause problems but internal bleedings should be healed. Some bleedings might be caused by injury or hit but many of them are without an obvious cause and are caused spontaneously. Apart from the missing or deficiency of the clotting protein, your child is a normal one. The intensity is different in different people. In mild hemophilia bleeding is problematic in serious injuries and operations only. In moderate hemophilia bleeding is sometimes caused by a hit. In severe hemophilia bleeding is caused without any obvious cause. These bleedings are called “spontaneous bleeding”. New born babies show the bleeding symptoms rarely except in circumcision. However, when the child starts to crawl, some livid spots appear under his/her skin. When trying to stand or walk, continuously falls down and might hit his/her face and cut his/her lips. If the baby hits his/her head and won’t be healed, it will be really dangerous. The bleeding inside joints and muscles occurs in older ages. Continuous bleedings inside joints and muscles that are not healed completely will result in a kind of swollen joints which causes asthenia is the muscles around the swollen join. The spread of hemophilia: based on statistics, 1 of each 10,000 of masculine population has hemophilia and the spread of it between all races and social statuses is the same.


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Isfahan Hemophilia Society